It has been a while since I last updated my blog.
Josh has had many months of good health and for that we are so grateful.
We recently had an appointment at MacMaster after his last MRI. We saw Joshs' neurosurgeon.
The results of his MRI were very encouraging once again.... NO GROWTH. It is great to hear those words and I don't think we will ever tire of it. We were also told that the second tumor that the doctors saw after our May MRI is actually indeed a lesion that is consistent with Joshs' syndrome. I have previously posted about Josh's syndrome- ECCL- short form for Encephalocraniocutaneous lipomatosis.
She also was very happy and surprised that Josh is not having seizures, another blessing to be thankful for.
The Doctor seemed quite happy to report that it was a lesion rather then a tumor, however it did not strike me to ask what the difference is......
I have googled "lesion" which they often report: tumor...??
I find this a little confusing, but we have another appointment in several days which I hope to clarify this.
I must admit, I do find that as time goes on... I am a little more stressed before getting the results of each MRI. This may sound strange, because Josh is not showing any real changes in behaviour, balance, sight...etc... but sometimes I feel that things have been too good... and then get nervous that something is going to happen, to change all that. It can be very overwhelming......
Josh's case has been transferred to the Neurology Oncology clinic which we will meet with in several days... we got home from this recent visit and about an hour later the phone rang.. it was MacMaster... the receptionist explained that she was from this clinic and they had just received the MRI results and wanted to see John and I... I explained that we had just got home from an appointment there.. we went through which Doctors we saw today, then she said that we still needed to come and see them...
My first instinct was FEAR... but after talking to John, he said they cant change their mind... they said NO GROWTH...its not like the scan changed after we left the hospital. So, now I am at peace again.
Josh is enjoying his hockey season, with 2 goals under his belt already. He just beams when he gets that goal... and the team jumps all over him... It is such a joy to see him out there again, because he enjoys it so much.
I will post any new news from upcoming appointments, but would like to thank everyone for their prayers, kind words and encouragement. We are very blessed to have great family and friends. And once again God has answered our prayers and we are so thankful for that.
Psalm 107:1
"Give thanks to the LORD, for he is good; his love endures forever."
